Endometriosis: The silent war
Imagine having to endure pain every day for years, only to be told it's just part of being a woman. For those living with endometriosis, this is their reality.
What is Endometriosis?
Endometriosis is a condition resulting from the appearance of endometrial
tissue outside the uterus and causing pelvic pain, especially associated with menstruation.
Endometriosis by the numbers:
Endometriosis is a condition that affects 1 in 10 people in New Zealand, and 10% of women or those assigned female at birth worldwide. Yet this is misunderstood, underdiagnosed, and often just dismissed. This means millions are living with an illness which may go years without a diagnosis or proper treatment. Living with Endo is an ongoing battle that calls for emotional resilience, endurance and the courage to face hard truths.
Lets see how endometriosis has inspired someone to make a change. 
Jess Sandoval is the founder of Endo warriors Aotearoa. After living with Endo for more than 20 years, her journey from daily pain to advocating for this condition is a testament to resilience and grit.
Interview:
Do you think Endometriosis has the awareness it needs in New Zealand?
“Not at all. The lack of awareness about endometriosis in New Zealand is a significant issue. The fact that many doctors still don't fully understand the condition, or its symptoms, makes it incredibly difficult for those who are suffering to receive proper care. This lack of knowledge can delay diagnosis, leading to years of pain and confusion for individuals. It’s crucial that more education and awareness be provided not only to the general public but also to medical professionals, so that individuals with endometriosis can get the support and treatment they need in a timely manner.”
What were your struggles going through having endometriosis?
“I have had Endo for over 20 years, I have had many surgeries and lived most of my life in pain every day, but my biggest struggle was feeling so alone and not having people understand.”
What misconceptions about endometriosis frustrate you the most?
“One of the most frustrating misconceptions is that endometriosis is just a “bad period” or simply about heavy bleeding. Many people, including some healthcare professionals, fail to understand that endometriosis is a chronic, debilitating condition that goes far beyond menstrual symptoms. It can cause severe pelvic pain, pain during intercourse, gastrointestinal issues, and even infertility. Another misconception is the belief that it's just someone’s “lot in life” to endure painful periods, which trivialises the condition and prevents many from seeking proper treatment. The idea that it can be “cured” with a simple pill or surgery is also misleading—endometriosis is complex and often requires long-term management, including lifestyle changes and emotional support. These misconceptions not only delay diagnosis but also contribute to stigma, making it harder for people to receive the care and understanding they truly need.”
What important things did you learn from having endometriosis and what advice would you give to others?
“Having endometriosis has taught me the importance of self-advocacy and prioritising my health, even when it feels like the system isn’t supporting me. I’ve learned that I need to trust my body, listen to its signals, and not be afraid to speak up, especially when it comes to medical care. Patience and perseverance are key, as managing endometriosis is often a long-term process, and there may be setbacks along the way. But most importantly, I’ve learned that you’re not alone. There are communities, like Endo Warriors Aotearoa, where you can find support, share your experiences, and find strength in knowing that others understand your struggles. My advice to others would be to never give up seeking the right help and to remember that it’s okay to ask for support from friends, family, and groups that understand your journey. Take care of yourself, physically and mentally, and don't let anyone invalidate your experience.”
What to watch out for:
- Excessive menstrual cramps, pain
- Painful urination
- Diarrhea, constipation or lower back pain
- Abnormal or heavy menstrual flow
- Infertility
- Intercourse pain
- Vaginal bleeding between periods
- Fatigue
Endometriosis affects many, but with more awareness and a collective effort we can make a difference.
What you can do to help:
Educate yourself and others - Take the time to understand this condition and its impact on lives. Share accurate information with those around you to break the social stigma.
Offer support - Offer your support and get involved with advocacy groups like Endo warriors Aotearoa to raise awareness and support others.
Normalize Endometriosis- Encourage open conversations about periods and pelvic pain and listen to others experiences without judgment.
Be an ally - Be there to support everyone and anyone living with this condition.
In conclusion Endometriosis is not just a medical condition, it's a silent war affecting millions worldwide. Experiences like Jess Sandoval’s inspires us to create change and push for more understanding. Challenging misconceptions about this condition means we can better support and educate. We must strive to create a world where those living with endometriosis and others are cared, heard, and understood. It’s time to break the stigmas, and stand with those fighting this silent battle, because no one should have to face anything alone. For further information and support please visit: https://www.endowarriorsaotearoa.com/
Picture 1: https://endometriosisnews.com/what-is-endometriosis/
Picture 2: https://www.dailyinfographic.com/these-are-the-symptoms-of-endometriosis-you-need-to-know